De-tubing

In our last episode of visiting the medical staffs at various doctors’ office, yours truly promised to keep using the tube and pour a couple cups a day down it until the scales stabilized. I have to confess that’s one promise I’ve not kept. I’m not entirely sure why this is the case except for the fact I can’t stand using it, the formula makes me queasy (or worse), and now that I’m eating more real food, it smells worse than it used to when it was only formula going down. Smell, you ask? Why yes. Because the tube basically goes into a hole in your gut that’s continually trying to heal itself, you not only get gunk around the tube itself – this is why it always has to be dressed and can’t just lay against the skin – you also get a small but continuous amount of gas escaping from around it. Now, this is not noticeable, really, to anyone but the person carting the tube around with them all day long. Namely, me. And I’m getting pretty sick of all of that plus having to constantly readjust it around my neck to avoid having it get tangled up with itself. It’s painful, even after all this time, and it’s a little odd to be talking to someone and trying to adjust the tube at the same time. They always wonder just what it is you’re doing with yourself there – not quite the faux pas of a baseball player adjusting himself on national television, but annoying and sometimes embarrassing anyway.

So I’m considering going forward with scheduling a date to have it removed. Unfortunately, that date will have to be after the big bash on Memorial Day weekend, and I know I will be out of commission for the day after it’s removed and possibly for part of the next day since the procedure is almost the same as when they put it in. Nothing like being pumped up with air like a ballon and then having to let the air dissipate naturally. It hurts and I hate it, but there’s no way around it in order to get the tube removed.

I know this is going to be a bone of contention with those around me, and it was a lifesaver during and after treatment, but at this point I simply think it’s time for the tube to go.

One thought on “De-tubing”

  1. You sound like you are doing quite well not using the tube anyway. You know your body better than anyone else. I am sure you know if that time for removal is now…

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